Thank you so much for your kind comments and prayers. They have truly been lifting us up. Mom and I have been at St. Joe’s since last Friday. I’ve attached a picture of our little cabin with my bed tucked under the window. The view beyond is of Forest Lawn and I can see the steeple of the chapel where the memorial services for both Mom’s parents and her brother John were held. Their resting places are just out of view behind the tree line and somehow I find that comforting…..(though before she quit talking much, Mom and I joked that this is the absolutely the worst cruise ever and the activities director should definitely be fired.)
She has declined precipitously from the side effects of radiation. We are all in shock at how rapidly her rdeath is approaching. Last week she was independent at home, in treatment and hopeful for a cure. Her oncologist told me last night that they are shocked as well but he feels as things stand, she has days to perhaps weeks. To me it feels more like hours to days as her breathing and cognition have been changing rapidly.
As of yesterday morning the hospital was pressuring us about discharge plans but I hope they will just let us stay here peacefully from here on out. Mom emphatically stated that she doesn’t was to go back to her beloved Woodstock home and I want to honor that wish.
I feel very badly that so much of my time the past few days has been spent on the phone trying to line up a place for us to go instead of just being able to be present with Mom. The bureaucracy of our medical system is a terrible, terrible thing…but the incredible care and compassion the nursing staff, nursing assistants, and everyone has shown towards us has been amazing. I am deeply grateful to them and find it miraculous that they can do their jobs with such grace in spite of the relentless, unnecessary, and largely meaningless pressures they face from the cruelly broken system they must work within.
Thank you for reading these words. It makes me feel so much less alone to know that people are thinking of us with love. Please keep us in your prayers.
P.S. For those of you that knew our very special furry boy Theo…He died peacefully at home yesterday surrounded by his Daddy, Uncle Adam and Dr. Jennifer Douthwaite from Mockingbird Mobile Veterinary Service.